Wednesday, January 22, 2014
In other news:
A #rhyming (#sortof) #WORDLESSWEDNESDAY
As I mentioned in my last post, I've been trying really hard to lower my overall BG values and largely I've been doing pretty well on that front. My 7-day BG clocked in at 140 :D about a week back:
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"Whether the weather be fine or whether the weather be not, we shall weather the weather, whatever the weather, whether we like it or not."
At the same time, #Diabetes is unpredictable and this is today:
"Whether the weather be fine or whether the weather be not, we shall weather the weather, whatever the weather, whether we like it or not."
Friday, January 10, 2014
Determined...
I haven't posted in almost a month! Last time I was here I talked about my 1-yr blogaversary which corresponded nicely with an Endo appointment. That week I came down with a cold which kept my BGs even more out of sort that usual (read: High all the time), which was not very fun because presenting my Endo with a week of shitty numbers is not my idea of a good time. My A1C was "uncontrolled" (7.2) but in fact lower than I expected given the numbers I was seeing recently. My endo is awesome of course and was nothing but encouraging and helpful, although he made it clear that globally decreasing my BGs was the way to go. I think my I:C ratios are reasonable, but I did realize that my basals needed work, along with my psyche (specifically, I confessed to him that due to the fear of lows overnight, I go to bed higher than I should which in turn affects the next day)... Not sure how to fix that, except have a little faith confidence in my ability to maintain a relatively flat line of 80-120 mg/dL overnight. Easier said than done. However, armed with a donated Dexcom sensor (see last post), along with a refreshment read of particular sections of "How to Think Like a Pancreas", stringent monitoring of every bite I put in my mouth, logging, and no alcohol whatsoever (at least for now, while I figure things out with basals), I am incredibly determined to be the best I can possibly be at managing my condition and feeling better (physically and mentally) about my D. management. Last night, at a BG of 121 at 11 PM, I took a leap of faith confidence in Dexcom and went to bed without that sip or two of juice that I am for some reason so keen on having when my nighttime BG is below 150 (yes, you read that right, I feel compelled to go to bed higher, although during the day I'm incedibly comfortable with 90s these days :) Anyway, here is what happened:
And I think it is pretty awesome! And for the first time in I don't know how long waking up at 6:45 AM this morning (with a BG of 101) I managed to handle breakfast like a champ (you should see the typical 200+ peaks I ususally get...)
I can only hope that once this very last (in god knows how long) Dexcom sensor will hang on for dear life (day 12) and provide me with more and more pictures like this, so that I know when I rip off that sensor, I can do it again without it. And again. And again.
Have I mentioned that I feel great?! I never realized how even consistent high 100s with some 200+s in between can make you feel like shit... My 7-day average on my meter is 154. I'm used to the 190s.
I hope I can keep it up (down).
With love, -Maria
Thursday, December 12, 2013
The 1-Year Blogaversary Post
Wow, I am on time! ~A year ago today, this blog was born :) Ironically, I have an endo appointment this afternoon, weird...
I started blogging to connect with others, to share my story. A little over a year ago in the beginning of December 2012 I was at a tumor immunology conference in Miami. Needless to say, sometimes at conferences (especially as a graduate student traveling by herself to a city she's never been to) my time largely consisted of exploring the city, and also wasting time by surfing the web on my phone during boring events, or lengthy train rides. It was then that I began to read Kerri Sparling's blog sixuntilme.com and I couldn't stop myself. On the way back to the airport on the subway I literally drained my whole battery reading story after story of Kerri and other people living with or loving someone with T1D. At that time (as has been in all my ~6 years since Dx) I was extremely private about the fact that I had T1D. I would go as far as to day that on some level I was ashamed of it and to a degree felt out of place in the world (and thought others would see me differently and in a negative light if they knew). I guess a big part of it was being completely "normal" (doing things others did) for so many years (I was diagnosed at age 18) made me feel very strange and unlike myself as a diabetic. Over the last year, I took advantage of free counseling services through my university (all schools should have that!) where I discussed in depth many things, one of which was my self-image as a person with diabetes. I must say that I have come a long way in self-acceptance and confidence, which has in turn allowed me to share my true (type 1 diabetic :) self with other people. Friends were shocked. People I had known for years had no idea.. And while sometimes I would have to field some uneducated questions concerning what I should be or shuold not be eating or whatever, I still felt much more at ease and was largely unrattled by all of my "coming out" moments. The first post I wrote was titled: "T1D: Coming Out". In the last year, I have shared my chronic condition with at least 8 people (which is much much more than in any of the last 6 years). The thing is that I don't think it was so much the growth in age (18-25), nor was it 12 months of counseling that got me there. It was in fact reading the stories of others in the DOC, connecting with them (online and IRL), and realizing that I was not alone that did it for me. So for that DOC I sincerely thank all of you!
Moreover, I have learned that the DOC can be extremely (selflessly) helpful in times of need. I will share just as few examples of the kindness of strangers in the Twitterverse that will never be "just strangers". I can't think of a better word than friends, but it is different. I haven't been around here long enough, nor do I have a lot of funding to travel around to meet PWDs IRL, but nevertheless the compassion that was shown to me in the last year was nothing short of awesome and amazing. Here are a few recaps:
- Last February I was at an eye doctor's appointment, where in reponse to my honest answer about the last A1C (7.6), the "doctor" shouted at me: "WOW, so you are an UNCONTROLLED DIABETIC! Do you even know that Diabetes is the leading cause of blindness???!!!" (No lie, that was EXACTLY what she said). Then, she proceeded to tear me apart for my high morning BGs. At first I tried to explain to her that I understood all this (and more), that I was doing the best I can. I took out my Dexcom (she did not know what a CMGS was!!!) trying to explain to her how hard I was working to manage my condition. All I got was something like: "Well, you need to be doing much better or you will get complications." OK. Then I kind of snapped. And may have raised my voice. And then I tweeted all about it: (the replies are not shown here but there were many, and they were all expressed with such comradery and support that I almost cried happy tears ;)
- A few months later, my Dexcom receiver ended up in the toilet (you know)... I tweeted again, getting advice from people about putting it in rice,etc. That worked, and was great advice, saving the function of a very expensive device. What was really amazing though was the woman who was willing to send me at no charge her son's old Dexcom. I was very touched my her willingness to help a stranger and her compassion and grace when she DMed me that "I don't believe in reselling D supplies." (I offered to pay what I could and she wouldn't hear of it) Thankfully, my Dex is fine, and I didn't have to accept the gift, but this was another moment that solidified for me what a tight-knit and LOVING community this is...
- Fast forward a bit and my motherfucking! ins. co. decided to change things up and rebill (read: Back-bill) my sensors, turning out to cost me almost twice as much as expected. As a graduate student on my measly TA salary, I cannot afford sensors for my Dexcom system anymore (and now owe like $500 for shit I've already used). I can barely afford test strips and insulin. I tweet out in hopes of finding someone who switched to a G4 and might have some 7+ sensors they don't need. What do you know? Sensors along with a backup Dexcom trans. + receiv. coming in the mail this week. I am so excited to use them and extremely grateful to the gentleman who provided all these at no cost.
So, THANK YOU DOC. I love you all and would do the same for you... When I get all rich after my Ph.D. (ahahaha) I will definitely donate D supplies and fund charities and fly out to meet more and more of you :) Maybe I'll even switch from cancer reasearch to T1D, who knows?!
Con much amor, como siempre <3
~MM
I started blogging to connect with others, to share my story. A little over a year ago in the beginning of December 2012 I was at a tumor immunology conference in Miami. Needless to say, sometimes at conferences (especially as a graduate student traveling by herself to a city she's never been to) my time largely consisted of exploring the city, and also wasting time by surfing the web on my phone during boring events, or lengthy train rides. It was then that I began to read Kerri Sparling's blog sixuntilme.com and I couldn't stop myself. On the way back to the airport on the subway I literally drained my whole battery reading story after story of Kerri and other people living with or loving someone with T1D. At that time (as has been in all my ~6 years since Dx) I was extremely private about the fact that I had T1D. I would go as far as to day that on some level I was ashamed of it and to a degree felt out of place in the world (and thought others would see me differently and in a negative light if they knew). I guess a big part of it was being completely "normal" (doing things others did) for so many years (I was diagnosed at age 18) made me feel very strange and unlike myself as a diabetic. Over the last year, I took advantage of free counseling services through my university (all schools should have that!) where I discussed in depth many things, one of which was my self-image as a person with diabetes. I must say that I have come a long way in self-acceptance and confidence, which has in turn allowed me to share my true (type 1 diabetic :) self with other people. Friends were shocked. People I had known for years had no idea.. And while sometimes I would have to field some uneducated questions concerning what I should be or shuold not be eating or whatever, I still felt much more at ease and was largely unrattled by all of my "coming out" moments. The first post I wrote was titled: "T1D: Coming Out". In the last year, I have shared my chronic condition with at least 8 people (which is much much more than in any of the last 6 years). The thing is that I don't think it was so much the growth in age (18-25), nor was it 12 months of counseling that got me there. It was in fact reading the stories of others in the DOC, connecting with them (online and IRL), and realizing that I was not alone that did it for me. So for that DOC I sincerely thank all of you!
Moreover, I have learned that the DOC can be extremely (selflessly) helpful in times of need. I will share just as few examples of the kindness of strangers in the Twitterverse that will never be "just strangers". I can't think of a better word than friends, but it is different. I haven't been around here long enough, nor do I have a lot of funding to travel around to meet PWDs IRL, but nevertheless the compassion that was shown to me in the last year was nothing short of awesome and amazing. Here are a few recaps:
- Last February I was at an eye doctor's appointment, where in reponse to my honest answer about the last A1C (7.6), the "doctor" shouted at me: "WOW, so you are an UNCONTROLLED DIABETIC! Do you even know that Diabetes is the leading cause of blindness???!!!" (No lie, that was EXACTLY what she said). Then, she proceeded to tear me apart for my high morning BGs. At first I tried to explain to her that I understood all this (and more), that I was doing the best I can. I took out my Dexcom (she did not know what a CMGS was!!!) trying to explain to her how hard I was working to manage my condition. All I got was something like: "Well, you need to be doing much better or you will get complications." OK. Then I kind of snapped. And may have raised my voice. And then I tweeted all about it: (the replies are not shown here but there were many, and they were all expressed with such comradery and support that I almost cried happy tears ;)
- A few months later, my Dexcom receiver ended up in the toilet (you know)... I tweeted again, getting advice from people about putting it in rice,etc. That worked, and was great advice, saving the function of a very expensive device. What was really amazing though was the woman who was willing to send me at no charge her son's old Dexcom. I was very touched my her willingness to help a stranger and her compassion and grace when she DMed me that "I don't believe in reselling D supplies." (I offered to pay what I could and she wouldn't hear of it) Thankfully, my Dex is fine, and I didn't have to accept the gift, but this was another moment that solidified for me what a tight-knit and LOVING community this is...
- Fast forward a bit and my motherfucking! ins. co. decided to change things up and rebill (read: Back-bill) my sensors, turning out to cost me almost twice as much as expected. As a graduate student on my measly TA salary, I cannot afford sensors for my Dexcom system anymore (and now owe like $500 for shit I've already used). I can barely afford test strips and insulin. I tweet out in hopes of finding someone who switched to a G4 and might have some 7+ sensors they don't need. What do you know? Sensors along with a backup Dexcom trans. + receiv. coming in the mail this week. I am so excited to use them and extremely grateful to the gentleman who provided all these at no cost.
So, THANK YOU DOC. I love you all and would do the same for you... When I get all rich after my Ph.D. (ahahaha) I will definitely donate D supplies and fund charities and fly out to meet more and more of you :) Maybe I'll even switch from cancer reasearch to T1D, who knows?!
Con much amor, como siempre <3
~MM
Wednesday, November 20, 2013
On "burning out"
If you scroll back a few posts to see my old-school logging tactics you will find that I test like a maniac most of the time and try so so hard (most of the time) to stay under 200, even after food intake. Furthermore, I try really hard to remain stably in the low 100s overnight and not let breakfast kick my ass too much... In addition, I track my cycle religiously and think I have figured out how to adjust reasonably to the week 4 insulin resistance.
Having said this, I also have a life. It is filled with stress and love and unforseen circumstances and many other things. It is more important to me than my diabetes management but also I know that (on some level[s]) my life will suck proportionately with how much my D care sucks. And sometimes regardless of all my efforts, I really feel that my D care sucks.
When I see consistent 200s almost all day it makes me want to scream. Not only that, but sometimes it makes me just want to stop trying. Because sometimes it seems that no matter how hard I try and how diligent I am I will still fail.
Among many, I have 2 great flaws: I am impatient as all hell and also I am inconsistent. I am inconsistent in my procrastination, in my diligence, in many things. Combine that with impatience (and a little too much self-critisism) and you have one serious case of all over the place (especially when it comes to D management).
My endo appointment is in 3 weeks. I have not seen him since February. I feel like a failure because I know my A1C isn't where it "should" be. It is where it is and it is definitely my fault. At least that's how I feel about it right now...
Wednesday, November 6, 2013
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Wednesday, October 23, 2013
Catching Up
It's been a long time and I'm happy to report that I have not fallen off the face of the Earth (literally, yet)... Here is a bit of everything (diabetes and non):
1) Last week I was in Boston, MA for a family wedding and had the opportunity to meet two IRL type 1s (my 4th and 5th total T1Ds IRL). One of the two was Dr. Shara of http://diabeticdoc.blogspot.com/ who is as lovely in person as her writings convey. This was no coincident and was planned well in advance and I am really glad to have been able to go. There is something about seeing/hearing for yourself (outside of formal support groups or doctor's offices/hospitals or internet pages) the real people who live with such a unique and giant aspect of what you have to live with - type 1 diabetes. And that they are successful and funny and happy and not phased by it at all. Because this disease is difficult and it's easy to let it completely drown you, butknowing that meeting others who have been doing it for decades and are well-spirited, ambitious, and continue to work at it everyday after a long time is really inspiring.
2) My husband and I drove for 15 hours in 1 day (twice last week, with stops) with 3 dogs in the back of my hatchback. That was crazy but we made it. Blood sugar cooperated better than last year's trip. It wasn't even close to what I wanted and the trip made my BG average shoot way above what it has been the last few months, but I still had a great trip. It is a lot easier to use Novolog to correct quickly and effectively than Humulin R, I have to say that...
3) FAT! Can we talk about fat? Seriously. I knew that eating hi-fat meals would raise BG hours later due to gluconeogenesis by liver but I never realized how bad it could be. Something about the travel and family-time foods, followed by the cold front coming in after getting back to Ohio has prompted me to eatlarge like enormous amounts of cheese, hungarian salamis, and what I can only describe as Russian-style cured lard (with bread), caviar, and pretty much any other 80%+ fatty delicious things that go hand in hand with cold weather and red wine... (At one point I hit 429, slept through a lot of it, woke up still in the 300s after like enormous amounts of insulin... It was BAD. and silly. and unavoidable somehow.) PS. I'm totally OK though :)
4) On the work/school front - I submitted a breast cancer postdoc grant to the ACS last week and the next deadline is for an NIH grant on Dec. 8th. I should also start writing my dissertation (any time would be good). I'm trying desperately to get a semester off from teaching freshman bio labs in the spring so I can actually work - they like to keep us grad students busy... Finally, this upcoming Saturday, I will MC a student-run cell biology conference in West Virginia and I am super nervous but excited for all the planning to end... Event planning is stressful and I'm never doing it again! I think I may break out that last expired Dexcom sensor later today or tomorrow and hope it serves me well through the stresses...
On that note, I really hope that my next entry isn't a month and a half away... I miss this place <3
1) Last week I was in Boston, MA for a family wedding and had the opportunity to meet two IRL type 1s (my 4th and 5th total T1Ds IRL). One of the two was Dr. Shara of http://diabeticdoc.blogspot.com/ who is as lovely in person as her writings convey. This was no coincident and was planned well in advance and I am really glad to have been able to go. There is something about seeing/hearing for yourself (outside of formal support groups or doctor's offices/hospitals or internet pages) the real people who live with such a unique and giant aspect of what you have to live with - type 1 diabetes. And that they are successful and funny and happy and not phased by it at all. Because this disease is difficult and it's easy to let it completely drown you, but
2) My husband and I drove for 15 hours in 1 day (twice last week, with stops) with 3 dogs in the back of my hatchback. That was crazy but we made it. Blood sugar cooperated better than last year's trip. It wasn't even close to what I wanted and the trip made my BG average shoot way above what it has been the last few months, but I still had a great trip. It is a lot easier to use Novolog to correct quickly and effectively than Humulin R, I have to say that...
3) FAT! Can we talk about fat? Seriously. I knew that eating hi-fat meals would raise BG hours later due to gluconeogenesis by liver but I never realized how bad it could be. Something about the travel and family-time foods, followed by the cold front coming in after getting back to Ohio has prompted me to eat
4) On the work/school front - I submitted a breast cancer postdoc grant to the ACS last week and the next deadline is for an NIH grant on Dec. 8th. I should also start writing my dissertation (any time would be good). I'm trying desperately to get a semester off from teaching freshman bio labs in the spring so I can actually work - they like to keep us grad students busy... Finally, this upcoming Saturday, I will MC a student-run cell biology conference in West Virginia and I am super nervous but excited for all the planning to end... Event planning is stressful and I'm never doing it again! I think I may break out that last expired Dexcom sensor later today or tomorrow and hope it serves me well through the stresses...
On that note, I really hope that my next entry isn't a month and a half away... I miss this place <3
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