Food

Food is my focus as I continue to strive towards a "good" a1c. Mainly my focus is on extremely accurate carb counting, limiting total # of carbs (per meal), as well as finding new awesome recipes with a good balance of (good) fat & protein. Also - prebolusing more and bolusing for coffee spikes (but that's another story). Last week I bought my first bag of almond flour and made low-carb pancakes (yum!) Recipe: https://recipes.sparkpeople.com/recipe-detail.asp?recipe=489838 but I used milk instead of water! I have enjoyed these for brunch and breakfast alike. The other day I had my first a avocado (on it's own, not guac) - surprisingly tasty and satisfying. I am learning to bolus for protein (when needed). I am learning a lot of new stuff :) Pics below..

On another note, I found out this week that I was selected to give a talk at an international conference on neural tube defects at the end of next month (super excited/ slightly terrified - my first talk at a "real" meeting with PhD in hand) As a result I had to reschedule my Endo... Again. But - I have a feeling my next a1c will not be disappointing like the last one (and now I have even longer to improve it). Great BGs with no lows make me feel like a rockstar in the best way possible and it doesn't take endo guilt to make me want to work my butt off for my future <3 love y'all

Confession

I sort of have a confession to make. My biological Russian grandpa on my dad's side had diabetes. I don't know what type. All I know is that the family would talk about it sometimes. I also remember him - he was always incredibly skinny (passed away in his 80s, Heart disease if I'm not mistaken). The thing is when I ask my mom (what type) she doesn't really sound like she knows for sure (assumes type 2). I don't feel comfortable even asking my dad. We don't have a great relationship. So I don't know if there is a genetic cause to my D. I have never had any testing done.  I wonder sometimes if I might be more likely to pass it on to my future kids if it did "run in the family" but I know I can't really know because it's a probability that is based on too many variables at this point (in time/scientific progress). That is all (I think). Oh wait - my husband's grandpa (mom's side) died skiing because of low BG ; Him - I never knew, and B doesn't know what type (but I am assuming type 2).. No idea in reality though what type (and thus no idea re: genetic probabilities IF both our grandpas were type 1s.) THAT is all. I am not sad about it - just weirded out a little by the not knowing. Then again - if I knew - would it matter (statistically or realistically)? And moreover - if a child of mine did get type 1 - what then? In any case - as I like to say - it is what it is. And I am pretty sure that life in the future for a diabetic kid is going to be much better than today. And mine is pretty awesome :) Happy Friday

Obsessing...

Sometimes I really don’t want to think about Diabetes anymore. I would really like to just enjoy my life like a “normal person”. My management has been OK – certainly not great but certainly not horrendous. I’ll have blood drawn in about 6 weeks and I am hoping to make further improvements by then. I am not logging. But I am being diligent. But not obsessive. I’m just so over thinking about Diabetes ALL THE TIME. Honestly – I feel like I deserve better quality of life than that. My eating is good – meaning that I am eating things that I pretty much know what they will do to my BG, which makes it relatively easy (at least a lot easier than say Chinese food takeout or beer and pizza). I am thinking about having kids still – in fact I spent the weekend reading a baby book – not necessary because pregnancy is imminent but just because I would rather know about all the fun and gory details ahead of time (Aside: when I read about postpartum lactation during sex/orgasms, white wine shot out of my nose – it was that unexpected and really really funny). I will not spend my pregnancy (whenever it happens) obsessing. I repeat – I will NOT spend it obsessing. I am a hypochondriac. You’ve heard about the skin rash of the summer (I obsessed and it was nothing!) – now you will hear about my foot (hint: I obsessed and it was nothing). In a stupid effort to prevent my muddy dog from running into the house, I raised my bare foot to stop her from entering, but she just plowed right into it – with her teeth (poor thing) – leaving two nasty teeth imprints/blood blisters on the bottom of my foot :/ Of course I spent a good amount of time obsessing (e.g. reading up on dry gangrene and diabetes due to the blackish color of the blisters, which is of course normal). Of course my foot healed completely in the textbook time of 3 weeks it takes for a blood blister to dry up and peel off (gross). But yeah – I checked it – every day, multiple times (driving my husband up the wall I think). As a PWD I am primed to suspect bad stuff (teeth, feet, skin, you-name-it). Being a scientist in the biomedical field, exaggerates that further I think. But I am definitely over the threshold of “healthy obsession” (I think it’s normal to be concerned if you have a foot injury and diabetes, and make sure that it does not get infected and is healing properly, etc.) and into the “full on crazy obsession" (e.g. I have a blister on my foot so of course it’s going to get infected and not heal properly and of course I will face the horrible complications). NOT healthy. Speaking of complications from diabetes, I hate thinking about it, but I also somewhat feel like it’s inevitable. Which is a stupid thing to think because I don’t know that. I don’t know and no one does – YDMV. Then again, perhaps the unhealthy obsessions are just a result of guilt for not being “perfect” or working as hard as possible all the time to manage this disease the way I *should. I have a feeling others may have felt this way too at times.

Anyway – I am still trying to find a balance that encompasses diligent self-care and living the life I want to live without sweating the small stuff (but being honest and responsible) about my health. 

A Low Tale

A few months back, after a full Saturday of hiking and then drinking in the evening, I went to bed at a safely higher number and woke up early on Sunday morning to a BG of 180-something. I decided to take about ¼ U Humalog along with my morning Levemir and went back to bed. An hour and a half later I woke up (sort of). Drenched in sweat and feeling like I am starting to trip. Low low low. I knew I was probably low, but for some reason in my still sleepy haze I was quite calm about it. ¼ U of Humalog – I must be in the 80s or 70s but dropping still because of the exercise and ethanol from yesterday I thought. I got up (sort of). More like forced my arms to lift my ever-so-heavy body up and onto the carpet (I don’t keep snacks or a glucometer near the bed, but perhaps I should). My legs did not feel like they really wanted to move at all (at all!) but I used all remaining brain-power to rescue myself as I balanced ever-so-slowly towards the kitchen. The 30 feet or so of walking seemed loaded with every ounce of effort I could muster. I got to the kitchen – cold cold cold floor. I reached into my purse on the kitchen counter, pulled out my meter case, unzipped it, got out a strip, put it in, pricked my finger, and waited. 46.

I grabbed 2 Capri Suns and my testing supplies in my hands and “walked” back to the bedroom, where I promptly fell into bed and tried to keep myself propped up against the wall as I struggled to keep my balance and punch the straw into the juice box. “B, B, I’m 46. I am trying to get this juice open.” And then (as if I really was tripping) I began to sort of laugh uncontrollably. It seemed so incredibly ridiculous to me at that moment that I could not get that straw into the juice box. I finally did and then proceeded to suck it down. Juice number 2 – B had to help me get the straw in that one, much to my amusement. As I sat there, waiting for the carbs to kick in, fighting the urge to pass out/sleep (which one I am not sure), I felt a ridiculous amount of calm and control. “I’ll be fine” I said. “Go to sleep, I will sit here and wait it out”. B’s hand reached out to me and squeezed my hand, as I used the other to wipe/smear the sweat all over my face and chest. “I could barely walk to the kitchen” I said. “It was sooo difficult.” And then I kind of laughed some more, like a crazy person.

A BG check 15-20 minutes later showed a 65, and in half hour a 99. I went back to bed. I woke up an hour later, started breakfast, felt “lowish”, tested and was 79. I ate without blousing, contemplating my next move. Eventually, the increased insulin sensitivity as a result of the previous day’s activities subsided and I was able to resume some “Normalcy”. I am still amazed at my calm demeanor throughout the event, as I haven’t been in the 40s in many years. It took me about three months to finally write it down -

The weirdest low I have ever had. 

Invisible in the wild

It was a hot cruising day and the pool-loungers were out in full swing. The smell of tanning oils, sunblock, chlorine, and sea water was thick in the humid air. We navigated the deck, passing by the slew of semi-naked people, most of them sunbathing, eyes closed with headphones on, or perhaps reading, or chatting enthusiastically. And then I saw it. A woman, probably in her 30s, with what can only be described as the elusive “perfect” body – tan but not too tan, six-pack intact, classy bikini, great haircut, laying on her back, eyes closed, enjoying. The cannula on her stomach, with a tiny hot pink thing (sorry, I don’t pump, so I don’t know if different cannulas from different companies have different colors and what exactly the hot pink thing on the site was, but it stood out to me) connected to the tubing which was tethered out of sight on the side of her. I am pretty sure no-one else noticed. Perhaps (probably) some of them did, but I doubt they thought much of it. What went through my mind was – shit – it’s hot – I hope her insulin is OK. I wonder if her pump is in a special case or has an icepack nearby. I wonder how this vacation is going for her diabetes. And also – I am not alone! On this cruise-ship – here’s another from my tribe.

I wish I could’ve talked to her. Well, I know I could have but I didn’t even know if she spoke English. And also I didn’t want to make her feel uncomfortable in any way. I saw her again in the restaurant a couple of days later. Husband and two energetic kiddos. Eating a bowl of yogurt. “How the hell did she carb count that one?” I thought to myself (the pink, I assume strawberry, yogurt was just served in a giant bowl so go figure how much sugar is in that one). And then the realization that now that she was fully clothed I would never had known about her diabetes. And no one around does either. It is (mostly) invisible. 

Update!

Random list J

1.       I am back from Europe and it was pretty eventful. And full of freshly baked bread and hidden carbs and stubbornly high blood sugars. And alcohol. And hiking. And family time. And some stress nonetheless. On the way home our flight was delayed by 8 hours, causing us to miss a connection, and as a result spending 36 hours in various airports without even sleeping or brushing our teeth. The good news is we are getting financial compensation (happy dance!)

2.       The day before we left I noticed I had two very itchy bites – one on each of my legs – at least I assumed they were bites. Anyway, they itched very badly and I scratched them, and then within a day or two I had a secondary infection on my skin - a horrible itchy rash spreading with a vengeance - which is nothing that has happened to me ever before. At first I thought it might be poison ivy or something, but then quickly realized it was something else. So there I was – in Europe, high blood sugar, and a (really f’ing itchy) skin infection… In Greece I consulted with a pharmacist and we both agreed it was bacterial – so got a steroid/antibiotic cream. Which helped a bit (but I didn’t consider the double-whammy of rubbing that shit on my legs and then going out into the sun.) Can you say sunburn/ peeling/ super-irritated skin! And then the 36 hour airport adventure and all the Googling on skin conditions I did had me convinced that I might have anything from dermatitis to psoriasis to scabies. Yep, I am a hypochondriac.

3.       After coming home with my skin not looking any better, my BG in the 300s, and no sleep for almost two days, I may have had a slight mental breakdown. In fact, I cried about diabetes (something I have NEVER done before, but I guess needed to happen). I admitted (in a sobbing mess) to my husband that I was doing a shitty job controlling my diabetes, that my skin was probably still infected because I couldn’t get my BG down low enough for my immune system to help out, and that pretty much everything sucked and that I was a horrible person because of my shitty blood sugars. Yep. He responded so well. Hugs, and a “what can I do to help?” (side-note: I love him). Once I calmed down a bit, I asked for him to help hold me accountable. To help with carb counts. To ask me what my blood sugar is sometimes (not to like keep checks on me but just allowing him to be more involved, but not in a pedantic way if that makes any sense at all).

4.       After getting about 11 hours of sleep, re-hydrating, and getting the BG to come down a bit, I felt pretty silly about being a crying mess the day before. But something changed that day. I think when you come out and say to someone (besides yourself or the internet): “I am struggling and I need help”, you give yourself permission not to be perfect, and permission to love yourself when you are far from it. And even motivation to try harder. Anyway.

5.       The skin- about three days after getting back I went to one of those Minute Clinics and had my skin checked out. Of course by then, it was almost back to normal (the NP must’ve thought I was crazy). She said it wasn’t infected anymore and that I could switch from the Ab/Strd cream to OTC HCT 1%/. The rash is completely gone by now – apparently it was just some random infection that can happen whenever there is any break in the skin – cellulitis – and it was not serious and it happens to lots of people all the time. Of course, me being me, I spent a lot of time blaming my poor BG control for it. But maybe it was just a random rash and I shouldn’t have been so concerned.

6.       I went to the dentist last week! There is an exclamation point because: 1. I haven’t been in about 6 or 7 years :O and 2. This was the first appointment I scheduled for myself (my mom would schedule all of mine, even in my early 20s..)  And I was so happy that there were really no issues and that I got complimented on my oral hygiene. Also, I lied about my A1C, giving them the 6.8 (which it was about a year ago), instead of the last 8.6. I just didn’t want the f’ing lecture (dum dum dum complications gum disease uncontrolled blah blah blah) – can you blame me?

7.       I rescheduled my endo appointment to the end of October because I can’t face him right now nor can I face my A1C.

8.       I may have said this before but I feel very determined to get my A1C under 7 (like now). I know I can do it. It’s so weird – how time flies. B and I have started looking for jobs. There have been HR departments we are keeping in contact with and it seems like there are lots of exciting opportunities. Shit’s going down this year (or next), depending on when B finishes his Ph.D. and when/where we move. And then... Well – I mean – we are pushing 30 and probably going to want to start a family (what?) Re-reading some posts of Kerri and other ladies who have had pregnancies with T1D has been very motivational. Re-reading some of my old posts has brought laughter and a little bittersweet sadness. I’m not 17 anymore. Much closer to 30 now (how DID that happen!?)

Not much of a point to this post besides the update – we are working hard on careers as well as continuing with the training our dogs received while we were away. Celebrated 6 years of marriage last Sunday. And lots to do, lots to do, and hopefully a little fun to be had before the summer ends <3

On training future ophthalmologists

I am fortunate to have to opportunity to help train our ophthalmology graduate students at one of the top-two ophthalmology programs in the country! Very exciting!
In fact, training graduate students of all sorts is a typical job for postdocs like myself. In case you are not familiar, a postdoc is someone who just/recently received a Ph.D. and takes on a training opportunity (usually ~1-5 yrs. in a typically academic research environment) prior to pursuing a "real" job (such as a professorship or other). Also: postdoc = underpaid slave = TRUE

Anyway, as a diabetic I am especially interested in eye physiology/disease and especially on fostering connections/mutual understanding between doctors and patients as much as possible in order to improve the quality of care and help improve human health in general. Thus, last year, when I was offered a postdoctoral position in the college of optometry at a major state university, I did not hesitate to accept. But until recently, I never considered how working in an optometry clinic fundamentally connected me to diabetes/PWDs/people who know about diabetes. And specifically optometry students, who are already and will continue to be seeing PWD's for the better part of the 21st century. And I have a chance to make a difference in their training. On both a professional and a personal level.

Case in point: I shared my type 1 diabetes with my graduate student. Here's the biggest thing I realized as we discussed - the absolute lack of knowledge of how grueling the management can be. Here is a brief snapshot:

Him: Yeah, people who don't manage their diabetes - it's crazy - we've had people pass out from low BG - so we always have juice boxes on stock - and soooo many people don't even know what their HbA1C is! I am just happy to hear when my patient KNOWS what their A1C is because it shows they are managing their condition. The A1C gives so much more information than just the last number, you know?! Some of my patients tell me their last number and I sometimes wonder if they're lying. But if they know what an A1C even is, that means they really care so...  [he sounded so excited and knowledgeable... Yes, I know..]

Me:Yes, it's important to know your A1C. I also need to point out that the last number is not at all reflective of a person's care. Blood sugar swings are very common, especially in people who use insulin. Additionally, people can and do lie about their A1C. The thing is, sometimes when we see a doctor, we can feel very judged about our numbers, especially if we don't feel like the physician understands how much we care, and how difficult the management is.

(For instance, I once had a physician rattle off all the possible effects of having a slightly higher than "acceptable" last bg value/A1C. She did this in a very pedantic and accusatory way: "Oh, so you're an UNCONTROLLED DIABETIC??!!... Did you know that Diabetes is the leading cause of blindness??" Those were actually her exact words. I still remember her tone as she lectured me and handed me a handout of what my vision will probably look like since I'm such an uncontrolled diabetic... UGGHHH... [on the bright side, I learned a lot about how awesome the #doc is that day, as I tweeted about the appointment. I also confronted her; she apologized, and I can only hope I saved even a little aggravation and hurt feelings for her future diabetic patients.]

Him: Here's the thing. We HAVE TO tell you everything that can happen. We (the doctors) are paranoid. Did you know there was actually a diabetic woman who went blind and sued her eye doctor and won?! All because he didn't tell her the blindness would be permanent!!

Me: Wow, I did NOT know that.

The takeaway for me is that they have a long way to go in REALLY understanding - in particular - how difficult management is (sidenote: grad student has a t2 diabetic mother who is controlling with pills and diet currently, she was a nurse/professor of nursing!). The truth is there is a lack of empathy training. I don't know if it's all chronic diseases, or if it extends to oncology, etc. but that's the way it is.

Bottom line of their side is: They hear "diabetes", so they pull out a long checklist, and will rattle off all the necessary information not to get sued...

Sad but true. The good news is I am in position to make (an albeit) small difference - one at a time - and isn't that how it all starts? With anything?

On a completely different note - I am traveling to Europe this week - it's been calling my name for the last 5 years :) I will see you in July ["July - she will fly" - April, come she will by Simon and Garfunkel - lyrics below and if you're not familiar for the love of everything - YOUTUBE!]

Con mucho amor, como siempre
-MM

***
"April Come She Will"

April come she will
When streams are ripe and swelled with rain;
May, she will stay,
Resting in my arms again.

June, she'll change her tune,
In restless walks she'll prowl the night;
July, she will fly
And give no warning to her flight.

August, die she must,
The autumn winds blow chilly and cold;
September I'll remember
A love once new has now grown old.